Lady Rabia Abdul Hakim
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April 16, 2016 - The Support Group, Filming & Snowden Postponed

8/19/2016

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I was excited to finally meet other people face-to-face that could relate to my problems, having found a Keratoconus support group in the winter.  

Later, I would realise how incredibly important this group would be to my well-being and the health of my eyes.

John Thatcher, the group leader (and a transplant patient and scleral lense wearer) was well organised and I learned a lot about scleral lenses. I was also intrigued by the story of a fellow member who recently had a cornea transplant and another who was about to. Both people, insisted that their previous health care was poor, empathizing that they also had to be very persistent until they were seen by expert eye-care professionals.

Later, I received an appointment to pick up my new sclerals lenses.

FILMING

The students from the University of Wolverhampton had been coming to the house to film the documentary. We  developed quite a bond and they were scheduled to join the children and I climbing Mount Snowden . We were quite excited about summiting Snowden in a few days.

APRIL 21 - BAD WEATHER POSTPONES SNOWDEN

We had spent the last few days getting our gear ready for the climb. The weather was still cold and blustery, but we were hoping it would hold for the climb in two days.

But while the student film crew was at my house filming some final shots, I got a call from Jasmin at Focus Birmingham - The climb had to be postponed because the weather was just too bad. We could not take a chance going up with children and visually impaired people.

The climb is rescheduled for June 18th. 
​
We were all incredibly disappointed as this meant that the film crew would not be able to join us on the climb and it would alter the storyline of the documentary.

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    I'm an author, speaker, entrepreneur, illustrator, performance poet, master storyteller, and an advocate for women and BME eye health. I'm also severely visually impaired from advanced Keratoconus, a progressive corneal disease.

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